Kara will be THREE years old next month! I almost ask this with a question mark - I just can't believe the time has passed so quickly. All therapies up to this point have been through early intervention programs, and next month that will change.
Category: Health & Therapy
Our Third Visit To The Down Syndrome Clinic & Why It Took Me By Surprise
This post is about our 3rd visit to our local Down syndrome clinic, but first I want to share my favorite part about going. Believe it or not, what I love most about these visits is the waiting room...
22-Month Therapy Update
You've heard it time & time again - EARLY INTERVENTION IS KEY. This is proving to be true the deeper we get into Kara's therapy sessions. There is definitely a developmental gap between her and some of her peers, but that doesn't mean that she's failing. In fact - she's doing AMAZING things & we love … Continue reading 22-Month Therapy Update
20-Month Health Update
As she grows, I feel like I'm getting better at navigating the medical side of things. I know the best place to draw blood from, how to distract her while the doctor listens to her lungs, and the best hold for them to check out her ears. Having a kid with Ds means that there are more chances to practice these things, but it honestly doesn't run our life.
Advocating For My Daughter’s Ears & People First Language
This little girl went under anesthesia for the first time last fall. We had concerns for her hearing because we weren't seeing much progress with speech. We had her hearing checked and sure enough, her tympanograms were coming up flat. The flat results indicated that her eardrums weren't moving and there had to be a reason. We suspected … Continue reading Advocating For My Daughter’s Ears & People First Language
Our Second Trip to the Down Syndrome Clinic + DS Clinic Checklist & Guide
This appointment can be very overwhelming because it's many specialists visits rolled into one big one. It is a long day with a lot of information.
Because of this, I have created a checklist to help guide you through your next appointment to the DS Clinic - See inside for a free printable!
Round #1 Your Questions About Down Syndrome Answered
October is National Down Syndrome Awareness Month and while there are troops out spreading knowledge, I thought I'd do my part by giving you a PASS for all those questions that you might have asked yourself while following along on our journey.
10-Month Health & Therapy Update
My advice when it comes to any type of therapy is to trust yourself and your instincts first, but listen to the therapists and always ask questions. It is hard work, but the payoff is HUGE!
Registering for our Baby with Down Syndrome – Part IV: LUNCH TIME
Feeding this child of mine has never been a fun task. From the get-go we had problems latching so I've been exclusively pumping and bottle feeding ever since. I tell ya, low muscle tone is B*TCH.
8-Month Feeding Therapy
For someone with low tone, trying to talk has been described as trying to do so with a mouthful of marshmallows. If you were trying to speak with a mouthful of marshmallows, I might think you were rude... but never stupid.